News
Project News
Here you can find the most important news about the OPTIMA project.
Health Stakeholders advocate for enhanced collaboration in European Health Data Space (EHDS) Implementation
Brussels, Mar 5, 2025 – A coalition of 39 leading representatives from the European health community has publised a joint statement welcoming the publication of the European Health Data Space (EHDS) regulation in the EU’s Official Journal. The group underscores the need to promptly establish an inclusive and well-resourced Stakeholder Forum to ensure the effective implementation of the European Health Data Space (EHDS).
Information Leaflet for Data Providers – fresh out of the press!
The OPTIMA consortium has developed a leaflet to inform potential data providers on how they might get involved in the OPTIMA project.
Please check out the attached leaflet to learn more about our vision, challenges and solutions of the project, the progress we made so far, why you should become part of OPTIMA and how data providers can contribute to OPTIMA.
Charting the path forward: Joint stakeholder statement on the implementation of the EHDS (22 April 2024)
The EU health community welcomes the agreement on the European Health Data Space (EHDS) proposal and provides key recommendations to ensure the EHDS will be implemented in a way that provides most added value for patients and European health systems.
The draft text of the European Health Data Space (EHDS) in trilogues sparks deep concerns in the European healthcare ecosystem
The draft text of the European Health Data Space (EHDS) in trilogues sparks deep concerns in the European healthcare ecosystem 26 February 2024 – OPTIMA, as part of a coalition of 35 large health stakeholder organisations representing patients, health...
Public communications of EHDS stakeholder meeting with EU officials (6 Sep 2023)
6 September 2023, Brussels – OPTIMA, as part of a multi-stakeholder group consisting of 32 European patient organisations, medical associations, research organisations, data collaborations and industry associations met EU officials, including MEP Tomislav Sokol, Co-Rapporteur, as well as several permanent representations that will hold upcoming Presidencies of the Council of the European Union, to discuss how the European Health Data Space (EHDS) can facilitate health research and innovation to create tangible benefits for patients in the EU.
Joint Statement: health organisations define EHDS’ opt-out required for life-saving research
Joint Statement: health organisations define EHDS’ opt-out required for life-saving research
Stakeholders’ consensus response to the proposed European Health Data Space
OPTIMA joined a group of 29 stakeholders in welcoming the European Commission’s proposal on the European Health Data Space
Will the European Health Data Space unleash the power of data?
The new EHDS can play a key role in facilitating health data sharing for healthcare provision, health research and policy making if certain key aspects are taken into account
OPTIMA on Twitter
Find below the latest tweets from the OPTIMA project.
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🌍 Lung health & inequalities: A critical discussion 🎙️
The latest Lung Health Matters podcast by @EuroRespSoc is live! Dr. Marielle Pijnenburg & experts discuss how poverty fuels lung diseases like asthma & lung cancer.
🔊 Listen now: https://buff.ly/3WZBu5p
🚀 We’ve launched a video series on the ethical & legal aspects of the OPTIMA project, led by our WP2 team! 📽️ Each video covers a unique angle, from data protection to EU compliance. Stay tuned for insights! #AI #DataProtection #OPTIMA
https://buff.ly/3CedrZg
🚀 New in our OPTIMA series! “Exploring Synthetic Data: Redefining Privacy in Innovation.” Discover how synthetic data can boost medical research while protecting privacy. Watch now! #SyntheticData #Privacy #OPTIMA #AI
https://buff.ly/3EaOCxV
🌍✨ On #WorldCancerDay, we stand "United by Unique." OPTIMA envisions personalized oncology care for all, powered by AI, dynamic guidelines & shared decision-making. Let’s revolutionize cancer care in Europe together! 💡 #UnitedByUnique #OncologyCare
https://buff.ly/4jGuqEG
🤖 Exploring Unfair Bias in AI 🤖
🚨 New OPTIMA video: “Unfair Bias in AI.” Learn about the role of bias in AI development and how we’re working towards fair, inclusive tech. #AI #UnfairBias #OPTIMA #InclusiveAI
https://buff.ly/4gZetaG
📊 Multicentric Platform-Based Real-World Data and Research in Lung Cancer Screening and Early-Stage Lung Cancer 🩺
🗓️ 4 March, 2025 | Online
🌟 Insights into LDCT, AI, biomarkers & patient-centered research.
Register now: http://bit.ly/3EgHrED
#ThoracicOncology #NSCLC
