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Aquí puedes conocer las noticias más importantes sobre el proyecto OPTIMA.

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Health Stakeholders advocate for enhanced collaboration in European Health Data Space (EHDS) Implementation

Mar 5, 2025

Brussels, Mar 5, 2025 – A coalition of 39 leading representatives from the European health community has publised a joint statement welcoming the publication of the European Health Data Space (EHDS) regulation in the EU’s Official Journal. The group underscores the need to promptly establish an inclusive and well-resourced Stakeholder Forum to ensure the effective implementation of the European Health Data Space (EHDS).

Information Leaflet for Data Providers – fresh out of the press!

Dic 3, 2024

The OPTIMA consortium has developed a leaflet to inform potential data providers on how they might get involved in the OPTIMA project.
Please check out the attached leaflet to learn more about our vision, challenges and solutions of the project, the progress we made so far, why you should become part of OPTIMA and how data providers can contribute to OPTIMA.

Charting the path forward: Joint stakeholder statement on the implementation of the EHDS (22 April 2024)

Abr 22, 2024

The EU health community welcomes the agreement on the European Health Data Space (EHDS) proposal and provides key recommendations to ensure the EHDS will be implemented in a way that provides most added value for patients and European health systems.

The draft text of the European Health Data Space (EHDS) in trilogues sparks deep concerns in the European healthcare ecosystem

Feb 26, 2024

The draft text of the European Health Data Space (EHDS) in trilogues sparks deep concerns in the European healthcare ecosystem 26 February 2024 – OPTIMA, as part of a coalition of 35 large health stakeholder organisations representing patients, health...

Public communications of EHDS stakeholder meeting with EU officials (6 Sep 2023)

Sep 15, 2023

6 September 2023, Brussels – OPTIMA, as part of a multi-stakeholder group consisting of 32 European patient organisations, medical associations, research organisations, data collaborations and industry associations met EU officials, including MEP Tomislav Sokol, Co-Rapporteur, as well as several permanent representations that will hold upcoming Presidencies of the Council of the European Union, to discuss how the European Health Data Space (EHDS) can facilitate health research and innovation to create tangible benefits for patients in the EU.

Joint Statement: health organisations define EHDS’ opt-out required for life-saving research

Jun 6, 2023

Joint Statement: health organisations define EHDS’ opt-out required for life-saving research

Stakeholders’ consensus response to the proposed European Health Data Space

Oct 20, 2022

OPTIMA joined a group of 29 stakeholders in welcoming the European Commission’s proposal on the European Health Data Space

Will the European Health Data Space unleash the power of data?

Dic 17, 2021

The new EHDS can play a key role in facilitating health data sharing for healthcare provision, health research and policy making if certain key aspects are taken into account

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OPTIMA en Twitter

Aquí puedes encontrar los últimos tweets del proyecto OPTIMA.

OPTIMA Oncology Seguir 611 311

Tackling cancer through #RealWorldData and #ArtificialIntelligence. Our aim: the first European real-world #oncology data and evidence generation platform.